The Role of Prosthodontists in Habilitation and Rehabilitation in Rare Disorders – the Ectodermal Dysplasia Experience
Bergendal B, National Oral Disability Centre, The Institute for Postgraduate Dental Education, Jönköping, Sweden
The aim of the presentation was to highlight the strong trend world-wide of enhancing the opportunities for individuals with rare disorders to get adequate information and treatment using hypohidrotic ectodermal dysplasia as an example.
The development in recent years of databases for rare disorders, the establishing of resource centers in dentistry and the strong movement of user influence by the forming of patient organizations and exchange of information through the internet is described. Reference is made to the recent Scandinavian consensus conference on ectodermal dysplasia.
Motives for the centralization of treatment planning for persons with rare disorders preferably to resource centers, the compiling of treatment outcomes in databases and the advocating of a multidisciplinary team approach in dentistry is presented.
The prosthodontic profession has a key position in the habilitation and rehabilitation in many different diagnoses of rare disorders.